News and events
We are a parent and family led, patient centred charity registered in the UK
Join our GRI UK community
Your support is crucial to our mission. Whether through donations, volunteering, or raising awareness, you can make a difference. Together, we can improve the lives of those affected by GRI gene disorders and move closer to finding a cure.
Join our facebook groupJoin our family support group
Shop
We are planning an exciting online shop for you to purchase GRI-UK products. Come back here soon to find updated news and information
Fundraising
There are countless ways you can support GRI-UK and help us provide the necessary support and advice to families affected by GRI conditions. Here are some fun and impactful ways you can get involved:
Volunteer
As we embark on our mission to support families affected by GRI conditions, we are seeking individuals with a variety of skills and experiences to help GRI-UK become a stronger organization.