Welcome to
GRI-UK
We support and empower individuals and families affected by GRI disorders so that those diagnosed can lead the best life possible.
WHAT WE DO
What are we doing at GRI-UK?
Raising awareness
Increasing public and medical community awareness about GRI disorders to foster understanding and support, including within the NHS, of the symptoms, needs and medical conditions, to help enable better and faster access to diagnosis and treatments.
Advocating for research
Promoting and funding research to find effective treatments and ultimately, a cure for GRI disorder, fostering collaboration among diverse stakeholders, bringing together patients, parents, family members, medical professionals, researchers, scientists, pharmaceutical, bioscience and academic communities.
Supporting and empowering individuals and families
Building Community
FAMILY resources
Family support
We believe anyone with a GRI condition in the UK should be able to access the right information, to help diagnose, treat, care and manage all aspects of GRI disorders to promote better outcomes for people living with GRI disorders.
GRI(N) Patient Registry
The GRI(N) Patient Registry is a crucial resource designed to collect, manage, and utilize health information from individuals affected by GRI-related disorders.
GRI Global Census
The GRI Census has been designed to collect information about GRI patients to better understand the natural history of GRI-Related Disorders and gain more insight into the symptoms.
Simons Searchlight
SUPPORT US
Sponsor our work
Shop
Fundraising
Volunteer
As we embark on our mission to support families affected by GRI conditions, we are seeking individuals with a variety of skills and experiences to help GRI-UK become a stronger organization.